{"id":8893,"date":"2025-07-08T13:10:00","date_gmt":"2025-07-08T17:10:00","guid":{"rendered":"https:\/\/stillcoviding.ca\/en\/?p=8893"},"modified":"2025-07-09T21:29:42","modified_gmt":"2025-07-10T01:29:42","slug":"experts-call-new-canadian-long-covid-guidelines-contradictory-and-deeply-concerning","status":"publish","type":"post","link":"https:\/\/stillcoviding.ca\/en\/news\/experts-call-new-canadian-long-covid-guidelines-contradictory-and-deeply-concerning\/","title":{"rendered":"Experts call new Canadian Long COVID guidelines \u201ccontradictory\u201d and \u201cdeeply concerning\u201d"},"content":{"rendered":"<p><strong><em>Key points you should know:<\/em><\/strong><\/p>\n<ul class=\"wp-block-list\">\n<li>The McMaster GRADE Centre and Cochrane Canada developed more than 100 recommendations for Long COVID. However, experts say some of these guidelines could harm people with Long COVID.<\/li>\n<li>Some recommend controversial and scientifically unsupported therapies for the disease: exercise and cognitive behavioral therapy. These treatments mirror harmful and debunked recommendations for myalgic encephalomyelitis. They also contradict major guidelines.<\/li>\n<li>The majority of pediatric guideline developers came from the same children\u2019s hospital that parents say has psychologized their children\u2019s symptoms. And one committee member has an inconsistently disclosed conflict of interest.<\/li>\n<li>Professor emeritus Paul Garner attempted to influence the advisory committee, according to emails obtained through a public information access request.<\/li>\n<li>The organizations provided only one week for public comments on the recommendations. Many people with Long COVID stopped responding because they felt their voices were not being heard.<\/li>\n<\/ul>\n<p>Before she got sick, Adriana Pati\u00f1o was a competitive swimmer. She caught SARS-CoV-2 in 2020 and developed Long COVID, but she decided to keep swimming.<\/p>\n<p>\u201cAs an athlete, I am always used to needing to push through everything,\u201d Pati\u00f1o said. \u201cI definitely think that contributed to my Long COVID getting worse.\u201c<\/p>\n<p>Now, as leader of a patient advocacy organization called <a href=\"https:\/\/www.facebook.com\/groups\/638425162018045\/?ref=sharehttps%3A%2F%2Fm.facebook.com%2Fgroups%2F638425162018045%2F%3Fref%3Dshare&amp;exp=(null)&amp;mibextid=wwXIfr&amp;rdid=9zVAwSnFMlM0D4eX&amp;share_url=https%3A%2F%2Fwww.facebook.com%2Fshare%2Fg%2F1EBNV9JkPP%2F%3Fmibextid%3DwwXIfr\">Long COVID Canada Collaborative<\/a>, she is among many patients and researchers pushing back on the newly released <a target=\"_blank\" lang=\"en\" href=\"https:\/\/can-pcc.recmap.org\/\">Canadian Guidelines for Post-COVID Condition<\/a> (CAN-PCC). One guideline recommends exercise for people with an acute infection to prevent Long COVID \u2014 which isn\u2019t supported by any evidence, and many people with the disease, including Pati\u00f1o, <a target=\"_blank\" lang=\"en\" href=\"https:\/\/longcovidjustice.org\/exercise-activity\/\">say it actually increases the risk<\/a>.<\/p>\n<p>\u201cThat\u2019s when it tells you they\u2019re literally not listening to the patients or the research,\u201d she told <em>The Sick Times<\/em>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p><strong><em>Key points you should know:<\/em><\/strong><\/p>\n<ul class=\"wp-block-list\">\n<li>The McMaster GRADE Centre and Cochrane Canada developed more than 100 recommendations for Long COVID. However, experts say some of these guidelines could harm people with Long COVID.<\/li>\n<li>Some recommend controversial and scientifically unsupported therapies for the disease: exercise and cognitive behavioral therapy. These treatments mirror harmful and debunked recommendations for myalgic encephalomyelitis. They also contradict major guidelines.<\/li>\n<li>The majority of pediatric guideline developers came from the same children\u2019s hospital that parents say has psychologized their children\u2019s symptoms. And one committee member has an inconsistently disclosed conflict of interest.<\/li>\n<li>Professor emeritus Paul Garner attempted to influence the advisory committee, according to emails obtained through a public information access request.<\/li>\n<li>The organizations provided only one week for public comments on the recommendations. Many people with Long COVID stopped responding because they felt their voices were not being heard.<\/li>\n<\/ul>\n<div class=\"more-link-wrapper\"><a class=\"more-link\" href=\"https:\/\/stillcoviding.ca\/en\/news\/experts-call-new-canadian-long-covid-guidelines-contradictory-and-deeply-concerning\/\">Continue reading<span class=\"screen-reader-text\">Experts call new Canadian Long COVID guidelines \u201ccontradictory\u201d and \u201cdeeply concerning\u201d<\/span><\/a><\/div>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[96,18,11,14],"class_list":["post-8893","post","type-post","status-publish","format-standard","hentry","category-news","tag-canada","tag-covid-19","tag-long-covid","tag-sars-cov-2","entry"],"_links":{"self":[{"href":"https:\/\/stillcoviding.ca\/en\/wp-json\/wp\/v2\/posts\/8893","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/stillcoviding.ca\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/stillcoviding.ca\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/stillcoviding.ca\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/stillcoviding.ca\/en\/wp-json\/wp\/v2\/comments?post=8893"}],"version-history":[{"count":3,"href":"https:\/\/stillcoviding.ca\/en\/wp-json\/wp\/v2\/posts\/8893\/revisions"}],"predecessor-version":[{"id":8897,"href":"https:\/\/stillcoviding.ca\/en\/wp-json\/wp\/v2\/posts\/8893\/revisions\/8897"}],"wp:attachment":[{"href":"https:\/\/stillcoviding.ca\/en\/wp-json\/wp\/v2\/media?parent=8893"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/stillcoviding.ca\/en\/wp-json\/wp\/v2\/categories?post=8893"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/stillcoviding.ca\/en\/wp-json\/wp\/v2\/tags?post=8893"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}