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Tag: extreme fatigue

Functional neurological disorder is not an appropriate diagnosis for people with long Covid

Long Covid — the name adopted for cases of prolonged symptoms after an acute bout of Covid-19 — is an umbrella diagnosis covering a broad range of clinical presentations and abnormal biological processes. Researchers haven’t yet identified a single or defining cause for some of the most debilitating symptoms associated with long Covid, which parallel those routinely seen in other post-acute infection syndromes. These include overwhelming fatigue, post-exertional malaise, cognitive deficits (often referred to as brain fog), and extreme dizziness.

Given the current gaps in knowledge, some neurologists, psychiatrists, and other clinicians in the United States, United Kingdom, and elsewhere have suggested that an existing diagnosis known as functional neurological disorder (FND) could offer the best explanation for many cases of this devastating illness.

We strongly disagree. Although prominent news outlets such as The New Republic and Slate have promoted this perspective, it is unwarranted to view long Covid through the lens of functional neurological disorder. Despite assertions of robust evidence from those most invested in promoting it, the FND construct is based largely on speculation and assumption. Successful treatments for long Covid are much more likely to emerge from investigations into the kinds of immunological, neurological, hormonal, and vascular differences that have already been documented than from the inappropriate imposition of an often ill-fitting diagnosis onto the broad swath of people with these prolonged symptoms.

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Long COVID still has no cure — so these patients are turning to research

When Lisa McCorkell got COVID-19 in March 2020, her symptoms were mild. Her physicians told her to isolate from others and that she would recover in a few weeks. But the weeks stretched into months and McCorkell, who was working on a master’s degree in public policy at the University of California, Berkeley, started having debilitating and bewildering symptoms: fatigue, dizziness and shortness of breath. Previously an avid runner, McCorkell found her heart racing from simple efforts.

She struggled to find an explanation, and soon realized that her physicians didn’t know any more about her condition than she did. To complicate matters, the limited availability of high-quality testing for the coronavirus SARS-CoV-2 in the early days of the pandemic left many of her doctors wondering whether her symptoms were really due to COVID-19 at all. “I didn’t have health-care providers that took me seriously,” McCorkell says. “That largely pushed me out of the health-care system.”

McCorkell turned instead to those who were experiencing the same puzzling symptoms and frustrations, joining a support group for people with what would eventually be called long COVID. As they compared notes, McCorkell and a handful of others — many of whom had research experience — realized that the information they were sharing might be helpful not only for those with long COVID, but also for those looking to study the condition. So, they founded a non-profit organization, called the Patient-Led Research Collaborative (PLRC), to design, provide advice on and even fund basic and clinical research into long COVID and other chronic illnesses.

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Four years after COVID’s arrival, Austin’s ‘long haulers’ still search for answers

They do an activity that would normally not be tiring — it can be a pretty small mental or physical activity, [like] folding laundry, reading an email — and it just knocks them out and makes all their symptoms worse.

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COVID patients are 4.3 times more likely to develop chronic fatigue, CDC report finds

COVID-19 patients are at least four times more likely to develop chronic fatigue than someone who has not had the virus, a new federal study published Wednesday suggests.

Researchers from the Centers for Disease Control and Prevention (CDC) looked at electronic health records from the University of Washington of more than 4,500 patients with confirmed COVID-19 between February 2020 and February 2021.

They were followed for a median of 11.4 months and their health data was compared with the data of more than 9,000 non-COVID-19 patients with similar characteristics.

Fatigue developed in 9% of the COVID patients, the team found. Among COVID-19 patients, the rate of new cases of fatigue was 10.2 per 100 person-years and the rate of new cases of chronic fatigue was 1.8 per 100 person-years.

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Queensland GPs flooded with patients reporting heart problems after long Covid

Queenslanders are flooding GPs practices with heart problems sparked by long Covid, the state’s peak medical body has revealed.

Doctors are seeing more patients with myocarditis and pericarditis due to inflammation caused by the virus that can cause palpitations chest pain or shortness of breath.

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Many Canadians have had long COVID for almost 4 years. Researchers say there’s hope

Four years ago, Sonja Mally was a busy tattoo artist with a photographic memory and penchant for long hikes.

Now, the 38-year-old Toronto woman considers it a good day if she can do a small drawing, muster the energy to walk around the block or “perform very basic tasks.”

“It’s a hard thing to have to explain to people why maybe one day you might be doing fine and the next day you can’t find the words to complete a sentence,” Mally said.

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‘This isn’t a life’: The crushing burden of Long Covid

Ashleigh was saving up to travel overseas in the near future. Now, she’s housebound at 28, sometimes even bedbound, unable to drive or walk more than a short distance. “My mum has had to take care of me a lot this year, and I feel a bit bad for her experience as well.”

Michael, 32, was a busy Crown prosecutor. Now he’s been disabled for more than 18 months, taking long stretches off work and struggling with his mental health and damaged relationships. “It’s probably the worst thing that’s ever happened to me.”

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La COVID longue, un mal invisible (mais bien présent)

The majority of people experience extreme fatigue and many suffer post-stress discomfort, a kind of energy crash. Brain fog, lack of concentration and memory loss are also common symptoms.

Some people develop conditions and syndromes such as postural orthostatic tachycardia syndrome (POTS), characterized by dizziness and palpitations when a person is in a upright position. Others develop dysautonomia, which causes palpitations, pressure rises or falls, dizziness and gastric problems.

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How long COVID ruined my life, from crushing fatigue to brain fog

The change struck like a bolt of lightning from a clear blue sky. I’d been under the weather for a couple of weeks – nothing major, just a persistent cough, but for some reason I couldn’t seem to shift it. I took a day off work and carried on. Until 19 March, when I woke up and everything was different.

I was tired – overwhelmingly, crushingly tired, as if I’d been up for days, when in fact I’d slept all night – and I couldn’t think straight. When I tried to text my boss to tell him I wasn’t going to be able to make it into work, it took me more than an hour to string a sentence together.

Eventually, I got out a short apologetic message. Then I went back to bed, where I stayed for three days straight. It should have been scary, but I was too tired to be scared. The need for rest overwhelmed every thought or feeling.

—Rowland Manthorpe
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