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Tag: first-person stories

Video | Her mysterious symptoms turned out to be long COVID

Gill Deacon was a familiar voice to CBC Radio listeners in Toronto, but that all came crashing down when she started suffering mysterious and debilitating symptoms. The former Here & Now host opens up about her long COVID diagnosis and how she found her way back to feeling great.

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Video | The Signal | Live [from] the 3rd Canadian Symposium on Long COVID

Today we bring you a live on location show at the 3rd Canadian Symposium on Long COVID. We talk to doctors, researchers, students and patients…

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Long Covid Is Real — And It’s Changing an Entire Generation

Hundreds of thousands of kids in America are struggling with an illness that many doctors and schools refuse to recognize

In January 2020, just weeks before the NBA shut down and Costco shelves emptied and Tom Hanks got sick, Joy Corbitt’s only brother died in his mid-forties with symptoms of Covid. Which meant, from the pandemic’s earliest days, Joy was taking no chances.

She’d heard that Black and brown people like her seemed to be getting sick and dying at higher rates than other Americans. And that kids were either not getting sick, or getting less sick, or getting sick in ways we didn’t really understand. So, when it came to protecting her then-14-year-old daughter Lia, the North Carolina mother was vigilant.

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They Fought Outbreaks Worldwide. Now They’re Fighting for New Lives.

The Trump administration’s new global health strategy, released last month, lists its most important goal as outbreak prevention and response, both to protect Americans and to safeguard the economy.

Containing the Ebola outbreak in West Africa a decade ago cost the United States $5.4 billion globally and more than $70 million domestically, the strategy report notes, adding, “As we have unfortunately seen all too frequently, an outbreak anywhere in the world can quickly become a threat to Americans.”

Yet, the freeze on America’s foreign aid in January disrupted many programs that extinguished outbreaks. Citing “waste, fraud and abuse” at federal agencies, the administration also laid off thousands of scientists, including many who worked on preventing and containing infectious diseases.

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Video | Photo exhibition highlights reality of Canadians with long COVID

The Living with Long COVID exhibition is a collaboration by the Museum of Vancouver and SFU’s Faculty of Health Sciences – offering a glimpse into the daily lives of people who continue to struggle with a variety of symptoms. Global’s Safeeya Pirani hears from those who are a part of the project, and how they are hoping to spread compassion by sharing stories.

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Grandma’s stories

The author identifies several weak points in the discourse of Quebec Public Health regarding the prevention of COVID, particularly with regard to vaccination and the spread of the virus.

Grandmother Germaine liked to tell stories. I often fell asleep next to her, lulled by the adventures of Tom Thumb. She also liked to sprinkle our days with a lot of advice, and it was only later that I realized they were also grandmother’s stories. How many times has she repeated to me: “Put your hat on, you’re going to catch a cold!” While studying medicine, I quickly understood that wearing my hat wouldn’t prevent me from catching a virus!

My grandmother passed away a long time ago, but others have taken over and in turn tell a grandmother’s stories. Take, for example, Quebec Public Health: in 2025, it continues to repeat to us to wash our hands to avoid catching COVID. While it is true that washing the hands helps prevent other infections (such as gastroenteritis), this measure is not effective in protecting oneself from COVID.

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Smoke from Canada’s wildfires killed nine-year-old Carter Vigh – and 82,000 others around the world

Amber Vigh had taken the usual precautions when bringing her nine-year-old son, Carter, to summer camp in July 2023. There were no fires near their home in British Columbia, Canada. Her air quality app showed low levels of pollution. She could not smell any smoke.

Carter, a music-loving Lego enthusiast who had asthma, brought along his smiling shark tooth-patterned emergency kit that held an inhaler, allergy pill and EpiPen. When smoke did roll in from the north, Vigh took him indoors.

But at home that evening, Carter began to cough uncontrollably. Vigh and her husband, James, followed the doctors’ checklist – emergency inhaler, drink of water, steroid inhaler – and gave him a bath to cool down. Then, “all of a sudden, he started coughing again like crazy”, said Vigh.

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Alberta polio survivors fear ‘horrifying’ virus could return

Polio, a highly contagious viral infection that can cause paralysis and death, has been eradicated in Canada for decades thanks to widespread vaccination efforts.

There is no cure for polio; it can only be prevented, and doctors warn if vaccine rates continue to decline as they have in recent years, it could open the door to a return of the virus in Canada.

“It’s ridiculous,” said Pat Murray, a polio survivor who contracted the disease at just nine months old.

“It’s heartbreaking.”

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Long COVID left her son with debilitating stomach pain. Why it’s an ‘uphill battle’ for so many kids to get treated

When Rebecca Lewkowicz’s 10-year-old son, Ethan, first tested positive for COVID-19, the Toronto-based mom of two thought little of it — the boy had only minor symptoms, which went away in a matter of days.

She had little reason to suspect the mild infection in April 2022 would soon derail Ethan’s life trajectory and her plans for his future. Nor did she anticipate she would spend more than a year fighting for her son’s illness to be taken seriously.

“We were lucky because it only took us 13 months to be believed,” Lewkowicz told the Star. ”People (living with long COVID) go two, three, four years without being believed, and children even longer.”

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Why Canadians with long COVID feel forgotten by the health-care system: ‘The pandemic still isn’t over’

Parts of Tracey Thompson’s home are papered with notes.

Post-its and sheets of paper are pinned to her fridge and bookshelves, chronicling everything from doctor’s appointments to errands and upcoming tasks — physical reminders of what the 57-year-old says her brain can no longer keep track.

Five years after the dawn of the COVID-19 pandemic, Thompson has become one of the faces of long COVID, her journey chronicled by numerous news articles.

“I understand why more folks aren’t willing to be interviewed because they can garner a lot of negative attention,” she told the Star. “While telling my story can feel repetitive and is often stressful, there are still folks who don’t know what’s wrong with them or what the risks are, so I feel obligated to keep talking.”

Her profile may be higher than most, but Thompson is far from alone.

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Sick and tired: More than 20,000 Manitobans suffer from ME/CFS, a long-term chronic disease

There is a scene in a season 5 episode of ’80s sitcom The Golden Girls where one of the main characters, Dorothy, who has been…

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‘Abandoned and betrayed’: Removal of mask requirement in B.C. health care sparks outcry

We’ve come a long way from the days of general mask mandates for the public, but a recent move to eliminate the requirement in B.C. health care settings is causing some outcry.

According to a recent BC Ministry of Health release, “People are still encouraged to wear medical masks in health care settings as appropriate,” but it is not mandatory.

Some groups, including Protect Our Province BC and DoNoHarm BC, are questioning the decision. This response comes after B.C. announced that it was launching the spring immunization campaign on April 8.

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The pandemic didn’t end for this P.E.I. woman, who wants more support for those with long COVID

Just over two years ago, Nikkie Gallant never would have imagined that simply sitting up in bed would be an exhausting task for her.

That’s been the P.E.I. musician’s reality since the fall of 2022, when she was diagnosed with post-COVID condition, more commonly known as “long COVID.”

Now she drains a lot of energy just going to the sink for a glass of water or folding laundry. She often has to forget about plans to leave the house.

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‘Something was wrong with my brain’: How covid leaves its mark on cognition

In March 2020, Hannah Davis fell ill, and everything changed. Her respiratory symptoms were mild, but the neurological and cognitive fallout was frightening.

“I could tell very early on that something was wrong with my brain,” she said after getting sick with covid-19.

And Davis had quantitative proof — her score for processing speed on a cognitive test dropped from the 96th percentile right before the pandemic to the 14th percentile after her coronavirus infection.

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Young people with long Covid ‘battle’ for NHS care

Young people living with debilitating symptoms caused by long Covid have described feeling abandoned and having to “battle” to access NHS support.

Kaylee, 17, a once promising gymnast who hoped to represent her country, developed the virus on her 12th birthday and still experiences symptoms including dizziness and shortness of breath, causing her to miss school and give up on the sport she loves.

Two million people in the UK have long Covid, according to the Office for National Statistics.

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A 19-year-old athlete now spends his days bedridden because of long COVID

Struck down by long COVID for the past year, a great athlete and CEGEP student remains hopeful even if he has to spend his days lying down doing nothing, because the slightest effort completely exhausts him.

“Deep down, I think I’ll heal completely, but it’s going to take time. I trust science,” says Ludovic Bégin, with a weak voice on the other end of the line.

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Long COVID, “is it going to be like this for the rest of my life?”

Five years after COVID-19 disrupted the daily lives of many people in the country, some are still dealing with the lingering after-effects of this virus, whose symptoms are most often similar to those of the flu and fade after a few days. For Marie-Noëlle Claveau, the effects of long COVID persist, years later.

The singing professor and coordinator of the music program at Collège d’Alma has been dealing with the consequences of this disease since November 2023. Since then, she has been on sick leave and is being monitored at the long COVID clinic at the Jonquière Hospital.

“Let’s just say that the years 2023 and 2024 were quite difficult, but I can say that progress continues to be made slowly but surely,” says Marie-Noëlle Claveau.

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Lives on hold: Thousands of Quebecers suffering from long COVID five years after pandemic began

Roxanne Major was working as an auxiliary nurse in a seniors’ residence two years ago when a COVID-19 outbreak spread through the home, infecting staff and residents.

Asked to replace a colleague who fell ill, Major took extra precautions. She disinfected her medication cart three times and wore a mask, full gown, gloves and protective glasses.

Despite her efforts, Major soon tested positive herself. Following a brief attempt to return to work the next week — the dizziness and exhaustion were too much — she was granted 10 days off to recover.

Two years later, Major, 40, has yet to return to the job she loved for 19 years. As she said in a recent interview, “everything went upside down.”

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