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Tag: first-person stories

Long COVID patient feels ‘discarded’ by N.L. government, says it’s deflecting responsibility for condition

Newfoundland and Labrador’s Chief Medical Officer of Health, Dr. Janice Fitzgerald, says addressing and treating long COVID isn’t within the purview of public health.

It’s left some patients in the province feeling left behind.

“There’s so many people that are likely suffering that have no clue because there is no provincial directive,” said Stacey Alexander, a teacher from Corner Brook who has been suffering from long COVID since the beginning of 2020.

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First-person stories from British Columbians

CW: cancer, surgery, medical negligence, denial of care, disability grief

As part of DoNoHarm BC’s #Postcards4PublicHealth campaign, we’ve invited British Columbians to share their stories about the lack of Covid safety in BC – particularly the loss of mask protections in healthcare. Many wrote directly to policy makers. Some generously gave us permission to share their stories with the public and the press.

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La COVID longue, un mal invisible (mais bien présent)

The majority of people experience extreme fatigue and many suffer post-stress discomfort, a kind of energy crash. Brain fog, lack of concentration and memory loss are also common symptoms.

Some people develop conditions and syndromes such as postural orthostatic tachycardia syndrome (POTS), characterized by dizziness and palpitations when a person is in a upright position. Others develop dysautonomia, which causes palpitations, pressure rises or falls, dizziness and gastric problems.

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Long COVID Has Never Been Taken Seriously. Here’s Where It Left Us

Long COVID turned my life upside down. Amidst all the loss I’ve experienced, there’s been the cognitive dissonance of watching most of the rest of the world try to return to normal, without me in it. And seemingly unaware of the reality that COVID-19 is still out there, resulting in long-term chronic illness for a significant share of people infected.

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How long COVID ruined my life, from crushing fatigue to brain fog

The change struck like a bolt of lightning from a clear blue sky. I’d been under the weather for a couple of weeks – nothing major, just a persistent cough, but for some reason I couldn’t seem to shift it. I took a day off work and carried on. Until 19 March, when I woke up and everything was different.

I was tired – overwhelmingly, crushingly tired, as if I’d been up for days, when in fact I’d slept all night – and I couldn’t think straight. When I tried to text my boss to tell him I wasn’t going to be able to make it into work, it took me more than an hour to string a sentence together.

Eventually, I got out a short apologetic message. Then I went back to bed, where I stayed for three days straight. It should have been scary, but I was too tired to be scared. The need for rest overwhelmed every thought or feeling.

—Rowland Manthorpe
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