My daughter has been living with COVID for almost two years. She suffers day after day, without access to proper treatment. She endures overwhelming fatigue, brain fog, severe insomnia, trigeminal neuralgia and a disorder of the autonomic nervous system where her heart accelerates abnormally when she stands, causing dizziness, intense fatigue and faintness. She spends almost 20 hours a day in bed. Her husband has had to stop working to take care of her and their two children. I can’t stand by and watch her suffer.
This is not an isolated case: this suffering, sometimes present for six years, is still ignored by our health system, even though the existence of long COVID is firmly established by science.
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