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Tag: long COVID

They’re young and athletic. They’re also ill with a condition called POTS.

Kaleigh Levine was running drills in the gym with her lacrosse team at Notre Dame College in South Euclid, Ohio, when everything turned black.

“The coach wanted me to get back in the line, but I couldn’t see,” she remembered.

Her vision returned after a few minutes, but several months and a half-dozen medical specialists later, the 20-year-old goalie was diagnosed with a mysterious condition known as POTS.

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Researchers say more support, education needed to help B.C. long-COVID patients

Better long-COVID awareness, education and support are needed for patients, according to Simon Fraser University researchers who conducted a study on the topic.

More education for health-care workers, including doctors and nurses, is one of the recommendations made in a report done by the SFU-based Pacific Institute on Pathogens, Pandemics and Society.

The report includes findings from two focus groups of unpaid caregivers, professional care providers, long-COVID researchers and people living with long COVID, identified as “longhaulers.”

“It’s an invisible and new condition,” said Kayli Jamieson, a longhauler who co-led the focus groups as part of a larger study with Kaylee Byers, an assistant professor in SFU’s Faculty of Health Sciences. “Many people don’t believe that long COVID is real or exists. Unfortunately, that permeates through the healthcare system.”

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More awareness and investment needed to support people with long COVID: SFU report

It’s an invisible and new condition. Many people don’t believe that long COVID is real or exists. And unfortunately, that permeates through the healthcare system. Even outside of the medical system, there is a broader societal awareness that is lacking.

— Kayli Jamieson
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Long COVID still has no cure — so these patients are turning to research

When Lisa McCorkell got COVID-19 in March 2020, her symptoms were mild. Her physicians told her to isolate from others and that she would recover in a few weeks. But the weeks stretched into months and McCorkell, who was working on a master’s degree in public policy at the University of California, Berkeley, started having debilitating and bewildering symptoms: fatigue, dizziness and shortness of breath. Previously an avid runner, McCorkell found her heart racing from simple efforts.

She struggled to find an explanation, and soon realized that her physicians didn’t know any more about her condition than she did. To complicate matters, the limited availability of high-quality testing for the coronavirus SARS-CoV-2 in the early days of the pandemic left many of her doctors wondering whether her symptoms were really due to COVID-19 at all. “I didn’t have health-care providers that took me seriously,” McCorkell says. “That largely pushed me out of the health-care system.”

McCorkell turned instead to those who were experiencing the same puzzling symptoms and frustrations, joining a support group for people with what would eventually be called long COVID. As they compared notes, McCorkell and a handful of others — many of whom had research experience — realized that the information they were sharing might be helpful not only for those with long COVID, but also for those looking to study the condition. So, they founded a non-profit organization, called the Patient-Led Research Collaborative (PLRC), to design, provide advice on and even fund basic and clinical research into long COVID and other chronic illnesses.

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Video | Victorian children are diagnosed with long Covid

Victorian children as young as eight-years-old are being diagnosed with long Covid. Health experts warn it’s becoming more common, putting further pressure on the state’s health system.

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Cost of private Covid jabs risks widening health inequalities, experts warn

Experts and patient groups have warned that the high cost of private Covid vaccinations could exacerbate health inequalities and leave those more at risk from the virus without a vital line of defence.

Both high street chain Boots and pharmacies that partner with the company Pharmadoctor are now offering Covid jabs to those not eligible for a free vaccination through the NHS, with the former charging almost £100 for the Pfizer/BioNTech jab.

While Pharmadoctor says each pharmacy sets its own prices, it suggests the Pfizer/BioNTech jab will set customers back £75-£85, while the latest Novavax jab will cost about £45-£55.

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New Data: Long COVID Cases Surge

Experts worry a recent rise in long COVID cases — fueled by a spike in winter holiday infections and a decline in masking and other measures — could continue into this year.

A sudden rise in long COVID in January has persisted into a second month. About 17.6% of those surveyed by the Census Bureau in January said they have experienced long COVID. The number for February was 17.4.

Compare these new numbers to October 2023 and earlier, when long COVID numbers hovered between 14% and 15% of the US adult population as far back as June 2022.

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Almost one-in-five suffering from long COVID

A study of more than 11,000 Australians who tested positive to COVID-19 in 2022 has revealed almost one-in-five were still experiencing ongoing symptoms three months after their initial diagnosis, according to new research from The Australian National University (ANU).

The study was conducted in Western Australia (WA), with participants drawn from the almost 71,000 adults who tested positive to COVID-19 in WA between 16 July 2022 and 3 August 2022.

Lead researcher, Dr Mulu Woldegiorgis, said the results show the risk of developing long COVID from the Omicron variant is higher than previously thought.

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Omicron linked to more long COVID-19 cases: study

The Omicron coronavirus variant could be causing more cases of long COVID than earlier versions of the disease, scientists say.

A study of more than 11,000 Western Australians infected in 2022 found almost one in five continued to suffer symptoms three months after they initially tested positive.

Epidemiologist Mulu Woldegiorgis said the findings show the Omicron variant puts patients at greater risk of developing long COVID than previously thought.

“It is more than double the prevalence reported in a review of Australian data from earlier in the pandemic, and higher than similar studies done in the UK and Canada,” she said on Thursday.

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Study: Kids with COVID but no symptoms play key role in household spread

A study today in Clinical Infectious Diseases conducted across 12 tertiary care pediatric hospitals in Canada and the United States shows that asymptomatic children with COVID-19, especially preschoolers, contribute significantly to household transmission.

The researchers discovered that 10.6% of exposed household contacts developed symptomatic illness within 14 days of exposure to asymptomatic test-positive children, a rate higher than expected.

“We determined that the risk of developing symptomatic illness within 14 days was 5 times greater among household contacts of asymptomatic SARS-CoV-2–positive children,” the authors wrote.

They also found that 6 of 77 asymptomatic SARS-CoV-2–infected children during a 3-month follow-up developed long COVID, or 7.8% of them.

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Video | Elle espère guérir de la COVID longue depuis 4 ans

Family physician Caroline Grégoire suffers from post-COVID-19 syndrome [long COVID]. She shares her symptoms and her life’s struggle over the past four years: to manage her energy. She deplores the government’s lack of help and says her chronic fatigue has not always been taken seriously, or even invalidated, by healthcare workers.

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Long Covid: Teachers, healthcare workers most vulnerable occupations, report finds

Some people who had Long Covid early in 2020 are still not well. So the experience of being not listened to and not believed has been very harmful for them alongside the very considerable health impacts that they’ve had from Long Covid. […] The cost of inaction is going to be very high and that’s going to be a human cost and a financial cost.

— Lead author Amanda Kvalsvig
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COVID Linked to Lower IQ, Poor Memory and Other Negative Impacts on Brain Health

Taken together, these studies show that COVID-19 poses a serious risk to brain health, even in mild cases, and the effects are now being revealed at the population level. […]

The growing body of research now confirms that COVID-19 should be considered a virus with a significant impact on the brain. The implications are far-reaching, from individuals experiencing cognitive struggles to the potential impact on populations and the economy.

— Dr. Ziyad Al-Aly
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Four years after COVID’s arrival, Austin’s ‘long haulers’ still search for answers

They do an activity that would normally not be tiring — it can be a pretty small mental or physical activity, [like] folding laundry, reading an email — and it just knocks them out and makes all their symptoms worse.

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New economic analysis reveals Long Covid could be a long-term drag on economic growth and add pressure to already strained NHS

A new report by global economics consultancy Cambridge Econometrics reveals that Long Covid could have wider economic ramifications for the UK causing a drag on economic growth and added pressure on the NHS if no long-term healthcare funding commitments are made.

Funded by direct giving fund Balvi, and in partnership with Professor Emeritus in Public Health Ruairidh Milne from the University of Southampton, the report used available evidence on the cost of Long Covid treatment, economic inactivity among those living with the condition, and prevalence in the UK population to consider the long-term macroeconomic impacts on wider UK society by 2030.

Based on the assumption that there are no long-term healthcare funding commitments to manage Long Covid, the results estimate that Long Covid is likely to reduce GDP by around £1.5bn and 138,000 jobs each year. Were prevalence to increase to 4 million people per year by 2030, the negative impacts would increase to a reduction of around £2.7bn in GDP and 311,000 job losses each year.

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‘Long Covid’ sick pay scheme to end in move that will impact 120 healthcare workers

A dedicated sick pay scheme for people suffering from the effects of “long Covid” is due to end in two weeks’ time in a move which will affect around 120 healthcare workers.

In July 2022 the Government introduced a temporary scheme to provide special leave with pay for eligible staff suffering with the symptoms of long Covid, such as fatigue and exhaustion. While the scheme was previously extended following approval by the Department of Public Expenditure, it will now end on March 31st. The Department of Public Expenditure has told the Department of Health that no further extensions will be granted.

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Video | Four years in, Dr. Raj Bhardwaj discusses how far we’ve come in Canada since the COVID-19 pandemic was declared in 2020

CBC Calgary’s weekly health columnist, Dr. Raj Bhardwaj, discusses what we’ve learned and how far we’ve come with science and treatments since the start of the COVID-19 pandemic.

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Four years on: the career costs for scientists battling long COVID

Abby Koppes got COVID-19 in March 2020, just as the world was waking up to the unprecedented scale on which the virus was spreading. Her symptoms weren’t bad at first. She spent the early lockdown period in Boston, Massachusetts, preparing her tenure application.

During that summer of frenzied writing, Koppes’s symptoms worsened. She often awoke in the night with her heart racing. She was constantly gripped by fatigue, but she brushed off the symptoms as due to work stress. “You gaslight yourself a little bit, I guess,” she says.

Soon after Koppes submitted her tenure application in July, she began experiencing migraines for the first time, which left her bedridden. Her face felt as if it was on fire, a condition called trigeminal neuralgia that’s also known as suicide disease because of the debilitating pain it causes. Specialists took months to diagnose her with a series of grim-sounding disorders: Sjögren’s syndrome, small-fibre polyneuropathy and postural orthostatic tachycardia syndrome. To make time for the litany of doctors’ appointments, Koppes took a six-month “self-care sabbatical.”

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