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Tag: Simon Fraser University

What We Can Do about Long COVID’s Growing Toll


Kaylee Byers is an assistant professor in the faculty of health sciences and senior scientist at the Pacific Institute on Pathogens, Pandemics and Society at Simon Fraser University. Julia Smith is an assistant professor in the faculty. Kayli Jamieson is a master’s student in communication and a research assistant for the Pacific Institute. Rackeb Tesfaye is director of knowledge mobilization at the institute. This article was originally published by the Conversation.


We are living through a mass-disabling event: Over 200 million people worldwide have long COVID. In Canada, one in nine people have experienced long COVID symptoms, and this is likely an underestimate.

Occurring weeks to months after a COVID-19 infection, this multi-system chronic illness has led to what some have called “the shadow pandemic.” Although millions are navigating this new illness, four years into the pandemic both patients and their caregivers continue to face challenges accessing the information and care they need.

Most Canadians have had COVID, and at least one in five have been infected more than once. These trends are troubling because evidence suggests that the risk of acquiring long COVID increases with reinfection.


 Image description: A stylized image of a SARS-CoV-2 virus particle, depicted with bright red colours. Illustration by Gerd Altmann from Pixabay.


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Researchers say more support, education needed to help B.C. long-COVID patients

Better long-COVID awareness, education and support are needed for patients, according to Simon Fraser University researchers who conducted a study on the topic.

More education for health-care workers, including doctors and nurses, is one of the recommendations made in a report done by the SFU-based Pacific Institute on Pathogens, Pandemics and Society.

The report includes findings from two focus groups of unpaid caregivers, professional care providers, long-COVID researchers and people living with long COVID, identified as “longhaulers.”

“It’s an invisible and new condition,” said Kayli Jamieson, a longhauler who co-led the focus groups as part of a larger study with Kaylee Byers, an assistant professor in SFU’s Faculty of Health Sciences. “Many people don’t believe that long COVID is real or exists. Unfortunately, that permeates through the healthcare system.”

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More awareness and investment needed to support people with long COVID: SFU report

It’s an invisible and new condition. Many people don’t believe that long COVID is real or exists. And unfortunately, that permeates through the healthcare system. Even outside of the medical system, there is a broader societal awareness that is lacking.

— Kayli Jamieson
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