The Living with Long COVID exhibition is a collaboration by the Museum of Vancouver and SFU’s Faculty of Health Sciences – offering a glimpse into the daily lives of people who continue to struggle with a variety of symptoms. Global’s Safeeya Pirani hears from those who are a part of the project, and how they are hoping to spread compassion by sharing stories.
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Long COVID exhibition co-produced with community opens at the Museum of Vancouver
One in nine Canadians have experienced Long COVID symptoms, ranging from mild to debilitating. A new exhibition at the Museum of Vancouver, co-produced by Simon Fraser University’s Faculty of Health Sciences, invites visitors into the often-invisible world of those living with the life-altering effects of COVID-19.
Long COVID is a chronic condition affecting one or more organ systems that occurs after a SARS-CoV-2 infection and lingers for at least three months as a continuous, relapsing and remitting, or progressive disease state. Despite its prevalence, the condition remains widely misunderstood, under-researched, and stigmatized.
The Living with Long COVID exhibition brings these realities to light and offers a unique opportunity to intimately understand Long COVID through the eyes of those living it.
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What We Can Do about Long COVID’s Growing Toll
Kaylee Byers is an assistant professor in the faculty of health sciences and senior scientist at the Pacific Institute on Pathogens, Pandemics and Society at Simon Fraser University. Julia Smith is an assistant professor in the faculty. Kayli Jamieson is a master’s student in communication and a research assistant for the Pacific Institute. Rackeb Tesfaye is director of knowledge mobilization at the institute. This article was originally published by the Conversation.
We are living through a mass-disabling event: Over 200 million people worldwide have long COVID. In Canada, one in nine people have experienced long COVID symptoms, and this is likely an underestimate.
Occurring weeks to months after a COVID-19 infection, this multi-system chronic illness has led to what some have called “the shadow pandemic.” Although millions are navigating this new illness, four years into the pandemic both patients and their caregivers continue to face challenges accessing the information and care they need.
Most Canadians have had COVID, and at least one in five have been infected more than once. These trends are troubling because evidence suggests that the risk of acquiring long COVID increases with reinfection.
Image description: A stylized image of a SARS-CoV-2 virus particle, depicted with bright red colours. Illustration by Gerd Altmann from Pixabay.
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More awareness and investment needed to support people with long COVID: SFU report
Comments closedIt’s an invisible and new condition. Many people don’t believe that long COVID is real or exists. And unfortunately, that permeates through the healthcare system. Even outside of the medical system, there is a broader societal awareness that is lacking.