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Tag: United States

Rep. Ilhan Omar to Introduce Major Long Covid Bill

On Friday, Minnesota Rep. Ilhan Omar (D-Minn.) will introduce a potentially groundbreaking piece of federal legislation in the House of Representatives—one allocating $10 billion in funding to fight Long Covid, the increasingly widespread, chronic condition that follows many Covid infections. The Long Covid Research Moonshot Act is a companion bill to one that Sen. Bernie Sanders (I-Vt.) introduced in the Senate in August.

“Long Covid is a silent health crisis impacting over twenty-three million Americans, including one million children,” Omar said in a statement to Mother Jones. (Rep. Ayanna Pressley, D-Mass., is the co-lead on the legislation.) “I’m proud to lead this effort in the House to recognize Long Covid as the public health emergency that it is and invest in countering the effects of this terrible disease.”

Long Covid symptoms often include debilitating fatigue, and many people found to have it have also been diagnosed with conditions like myalgic encephalomyelitis/chronic fatigue syndrome and postural orthostatic tachycardia syndrome. ME/CFS, which is characterized by post-exertional malaise, is known to be associated with other infectious diseases—the CDC states that about 1 in 10 people infected by the Epstein-Barr virus (which 95 percent of adults get) experience ME/CFS-like symptoms. And research shows that repeated Covid infections increase people’s risk of developing Long Covid.

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Study: Individuals with pre-existing disabilities had long COVID at much higher rates than peers

The COVID-19 pandemic has been especially hard on individuals with disabilities. New research from the University of Kansas shows that this population is also experiencing long COVID at significantly higher rates than the general population, which exacerbates existing barriers to accessing care.

Researchers from KU’s Institute for Health and Disability Policy Studies at the KU Life Span Institute and the Patient-Led Research Collaborative published a study showing that more than 40% of individuals with pre-existing disabilities who had tested positive for COVID-19 experienced long COVID, defined as symptoms lasting three months or longer. This rate is more than twice the 18.9% of individuals without disabilities who contracted COVID and experienced long COVID symptoms.

Research has long documented that individuals with disabilities face barriers to health care access and experience poorer health outcomes than their nondisabled peers. However, many studies during the pandemic have only asked about disabilities present at the time of the survey rather than whether individuals had a disability prior to the start of the pandemic. The research team compared data from the 2022 National Survey on Health and Disability, conducted by the IHDPS, to the Household Pulse Survey conducted by the Centers for Disease Control and Prevention.

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Teens and kids with long COVID are showing surprising new symptoms

Rose Lehane Tureen is one busy teenager.

The 16-year-old is class president, an Irish step dance champion, singer, cross-country runner and straight-A student at her high school in Maine.

Her accomplishments belie the reality that she suffers from a debilitating headache that has lasted for more than four years, one of the several long COVID symptoms she’s endured since an infection in March 2020.

At the beginning of her illness, Rose went to the emergency room half a dozen times and was hospitalized twice with dizziness and blinding head pain. She also had red and swollen fingers, toes and ears; peeling skin; joint pain; problems controlling her temperature and terrible dreams.

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NIH-funded study finds long COVID affects adolescents differently than younger children

Scientists investigating long COVID in youth found similar but distinguishable patterns between school-age children (ages 6-11 years) and adolescents (ages 12-17 years) and identified their most common symptoms. The study, supported by the National Institutes of Health (NIH) and published in JAMA, comes from research conducted through the NIH’s Researching COVID to Enhance Recovery (RECOVER) Initiative, a wide-reaching effort to understand, diagnose, treat, and prevent long COVID, a condition marked by symptoms and health problems that linger after an infection with SARS-CoV-2, the virus that causes COVID-19.

Children and adolescents were found to experience prolonged symptoms after SARS-CoV-2 infection in almost every organ system with most having symptoms affecting more than one system.

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Mask bans disenfranchise millions of Americans with disabilities

Last week, a mask ban in Nassau County, New York was signed into law. If I lived just 60 miles east of my New Jersey town, I would be under threat of a fine or jail time every time I left the house.

I’ve been masking consistently in public since 2020, when the Covid-19 pandemic began, because I have a kidney transplant and will take immunosuppressant medication for the rest of my life. Unfortunately, my lifesaving medication also makes me more susceptible to infectious diseases like measles, the flu, and Covid-19. Even when people like me are vaccinated against the virus, we are at higher risk of being infected and are more likely to experience adverse health outcomes, including hospitalization and death.

The legislation in Nassau County and elsewhere primarily targets people who wear masks to hide their identity while committing crimes or during public protests, specifically against the ongoing genocide in Palestine. Masks are defined as any facial covering that disguises the face, and facial coverings worn for religious or health reasons are exempt. But people like me, who wear masks for health reasons, are disproportionally affected by these bans even when they include medical exemptions.

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FDA may greenlight updated Covid-19 vaccines as soon as next week, sources say

The US Food and Drug Administration is poised to sign off as soon as next week on updated Covid-19 vaccines targeting more recently circulating strains of the virus, according to two sources familiar with the matter, as the country experiences its largest summer wave in two years.

The agency is expected to greenlight updated mRNA vaccines from Moderna and Pfizer/BioNTech that target a strain of the virus called KP.2, said the sources, who declined to be named because the timing information isn’t public. It was unclear whether the agency simultaneously would authorize Novavax’s updated shot, which targets the JN.1 strain.

The move would be several weeks ahead of last year’s version of the vaccine, which got FDA signoff on September 11.

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Long COVID leads to missed work days, economic loss

About 14% of participants in a new long-COVID study from Yale said they didn’t return to work in the months after their infection, suggesting that the condition results in major economic losses. The study is published in PLOS One.

The study was based on the outcomes of 6,000 participants at eight study sites in Illinois, Connecticut, Washington, Pennsylvania, Texas, and California from 2020 through 2022 as part of the Innovative Support for Patients with SARS-CoV-2 Infections Registry, or INSPIRE study.

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The US Government Is Shutting Down A Key Covid Website

Tomorrow the US government agency responsible for biomedical and public health research, The National Institutes of Health, will shut down its Covid-19 ‘special populations’ website.

This site hosts a huge amount of information about how to treat covid and long covid in the immunocompromised and in people with HIV, cancer and similar immune supressing conditions – so-called ‘special populations.’

The site is going totally offline.

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New studies estimate long-COVID rates, identify risk factors

As new variants continue to emerge and infect people, older adults remain highly vulnerable to long-term health effects from this pathogen. Continued multidisciplinary research is needed to understand and prevent long COVID to reduce morbidity and mortality and maintain quality of life in older adults.

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About 400 Million People Worldwide Have Had Long Covid, Researchers Say

About 400 million people worldwide have been afflicted with long Covid, according to a new report by scientists and other researchers who have studied the condition. The team estimated that the economic cost — from factors like health care services and patients unable to return to work — is about $1 trillion worldwide each year, or about 1 percent of the global economy.

The report, published Friday in the journal Nature Medicine, is an effort to summarize the knowledge about and effects of long Covid across the globe four years after it first emerged.

It also aims to “provide a road map for policy and research priorities,” said one author, Dr. Ziyad Al-Aly, the chief of research and development at the V.A. St. Louis Health Care System and a clinical epidemiologist at Washington University in St. Louis. He wrote the paper with several other leading long Covid researchers and three leaders of the Patient-Led Research Collaborative, an organization formed by long Covid patients who are also professional researchers.

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Long COVID is a $1 trillion problem with no cure. Experts plead for governments to wake up

For months, governmental officials around the world have appeared to want to forgo discussing the specter of long COVID. As a new review makes clear, that is wishful thinking—and the latest COVID variants may well kick long COVID into overdrive, a scenario that researchers and experts have been warning about for some time.

“I think they (government agencies) are itching to pretend that COVID is over and that long COVID does not exist,” says Ziyad Al-Aly, director of the Clinical Epidemiology Center at Veterans Affairs St. Louis Health Care System and lead author of the review. “It is much more pleasant to pretend as if emergency department visits and hospitalizations haven’t been rising sharply this summer.”

In a Nature Medicine review this week, Al-Aly and several other top researchers lay out a difficult truth: Long COVID has already affected an estimated 400 million people worldwide, a number the authors say is likely conservative, at an economic cost of about $1 trillion annually—equivalent to 1% of the global economy.

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COVID data quietly disappears while cases rise

California-based engineer and scientist Patrick Vaughan made a troubling discovery July 10. Dozens of facilities providing COVID-19 wastewater data went offline, seemingly overnight.

Vaughan had been following WastewaterSCAN, a national program that monitors wastewater for diseases. He noticed that 42 of the previously reporting 194 facilities suddenly displayed small blue triangles with the message “data is no longer collected from this site.” The development came just as people across the U.S. scrambled for information during a summer COVID wave that even infected President Joe Biden.

“This is a major blow to our COVID wastewater tracking abilities,” Vaughan told his followers in a video he posted the same day.

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Nassau Legislature approves act prohibiting mask wearing in some scenarios

The Nassau County Legislature passed the Mask Transparency Act Monday – a law that prohibits the wearing of masks in public in some scenarios.

Those over the age of 16 will not be allowed to wear masks, unless it is being worn for the person’s health, religion or celebratory purposes. Officials say police will be the ones to determine whether or not the masks are being used for those purposes.

Legislators explained their reasoning for supporting the measure during the hearing.

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Sanders Proposes ‘Moonshot’ Bill to Combat Long Covid Crisis

For far too long, millions of Americans suffering from long Covid have had their symptoms dismissed or ignored — by the medical community, by the media, and by Congress. That is unacceptable and has got to change.

The legislation that we have introduced finally recognizes that long Covid is a public health emergency and provides an historic investment into research, development, and education needed to counter the effects of this terrible disease. Congress must act now to ensure treatments are developed and made available for Americans struggling with long Covid. Yes. It is time for a long Covid moonshot.

— U.S. Senator Bernie Sanders, chair of the Senate Committee on Health, Education, Labor, and Pensions (HELP)
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SARS-CoV-2 widespread in Virginia wildlife, likely from people

An examination of 23 common wildlife species in Virginia finds evidence of SARS-CoV-infection in 6 and antibodies indicating previous infection in 5.

For the study, published today in Nature Communications, Virginia Tech researchers collected 789 nasal and oral swabs and 126 blood samples from animals live-trapped and released or being treated at wildlife rehabilitation centers in Virginia and Washington, DC, from May 2022 to September 2023.

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Wildfire smoke may increase the risk of dementia, study finds

A new US study has found that wildfire smoke may be worse for brain health than other types of air pollution and even increase the risk of dementia.

The findings, reported on Monday at the Alzheimer’s Association International Conference in Philadelphia, come as millions spent the weekend under air quality warnings from wildfires spewing smoke across the western US, including a huge wildfire in California that has grown to more than 360,000 acres.

At issue is fine particulate matter or PM 2.5 – tiny particles about 30 times smaller than the diameter of a human hair that can be inhaled deep into the lungs and move to the bloodstream. This pollution – from traffic, factories and fires – can cause or worsen heart and lung diseases, and the new study adds to evidence it may play some role in dementia, too.

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Colorado reports avian flu infections in 5 people who culled sick poultry

The Colorado Department of Public Health and Environment (CDPHE) has reported five human H5 avian influenza infections in workers who were part of the response to a recent large outbreak at a layer farm, four of which have been confirmed by the US Centers for Disease Control and Prevention (CDC).

Patients have eye, respiratory symptoms

The patients have mild illness, including conjunctivitis and common respiratory symptoms. None were hospitalized, according to statements from the CDPHE. Though officials haven’t said if the virus on the poultry farm is the same as the B3.13 genotype infecting dairy cattle, conjunctivitis has also been reported in four dairy farm workers over the past few months.

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Functional neurological disorder is not an appropriate diagnosis for people with long Covid

Long Covid — the name adopted for cases of prolonged symptoms after an acute bout of Covid-19 — is an umbrella diagnosis covering a broad range of clinical presentations and abnormal biological processes. Researchers haven’t yet identified a single or defining cause for some of the most debilitating symptoms associated with long Covid, which parallel those routinely seen in other post-acute infection syndromes. These include overwhelming fatigue, post-exertional malaise, cognitive deficits (often referred to as brain fog), and extreme dizziness.

Given the current gaps in knowledge, some neurologists, psychiatrists, and other clinicians in the United States, United Kingdom, and elsewhere have suggested that an existing diagnosis known as functional neurological disorder (FND) could offer the best explanation for many cases of this devastating illness.

We strongly disagree. Although prominent news outlets such as The New Republic and Slate have promoted this perspective, it is unwarranted to view long Covid through the lens of functional neurological disorder. Despite assertions of robust evidence from those most invested in promoting it, the FND construct is based largely on speculation and assumption. Successful treatments for long Covid are much more likely to emerge from investigations into the kinds of immunological, neurological, hormonal, and vascular differences that have already been documented than from the inappropriate imposition of an often ill-fitting diagnosis onto the broad swath of people with these prolonged symptoms.

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