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Tag: BC Centre for Long COVID ME/CFS & Fibromyalgia

B.C. program for kids with long COVID scales back services after changes to MSP

BC-CLMF has axed group sessions with allied health specialists

For 14-year-old Geo Roy, the success of a day can be measured by whether they make it out of bed.

“Today I had a shower, which I haven’t done in three days,” they said in an interview from their home on Protection Island near Nanaimo, B.C.

Since contracting a viral illness two years ago, which they suspect was COVID-19, the previously healthy teenager has been diagnosed with multiple chronic illnesses, including myalgic encephalomyelitis, commonly known as chronic fatigue syndrome, and fibromyalgia.

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Patients worry about impact of funding changes on long COVID clinic

As of Nov. 1, the changes are expected to reduce access to specialty support and increase waits between appointments with the clinic, based on Bowen Island

The summer before she got COVID-19, Karen Price spent 10 days backpacking on Mount Edziza in northern B.C.

The ecologist and forest policy worker from Salt Spring Island spent most of her time outdoors before contracting the disease in September of 2022, leaving her bed-bound for months.

Price tested positive for 16 days and spent the next six months in bed, struggling to breathe.

“At that point, GPs didn’t really know about long COVID,” she said, adding that she ended up doing much of the research about the illness and its ­treatment options on her own.

Eventually, she was referred to the B.C. Centre for Long COVID, ME/CFS & Fibromyalgia, based on Bowen Island.

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B.C. plans to cut payments for long-COVID clinics, leaving patients in lurch

A virtual clinic that treats patients for long COVID and other chronic conditions is warning that it may have to partially shut down if the province goes ahead with changes on Sept. 1 that would limit the number of patients who can take part in online group appointments.

The B.C. Centre for Long COVID, ME/CFS & Fibromyalgia, run by internal medicine doctors Ric Arseneau and R. Jane McKay, treats 5,000 patients for a variety of chronic diseases, such as myalgic encephalomyelitis, which causes extreme fatigue, and PoTS, a heart rate condition.

After each patient goes through an initial one-on-one consultation, follow-up appointments can take the form of a virtual group medical visit of up to 12 patients, where either Arseneau or McKay take at least one to two questions per patient, or a group medication visit of up to 50 patients, which allows for presentations on different medications and then takes questions from patients.

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