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Tag: first-person stories

De l’espoir pour les femmes atteintes de syndromes de fatigue chronique

Research into long COVID may benefit other fatigue syndromes that follow infections. These difficult to diagnose and treat disorders affect twice as many women as men. A symbol of sexism in medicine?

“When we started talking about long COVID at the end of 2020, patients told me how close it was to their symptoms,” says Durand, epidemiologist from the Université de Montréal who studied a cohort of patients with long COVID. “These are patients who for years had chronic fatigue, mental fog, abnormally low resistance to exertion. Doctors often told them it was in their heads. These are symptoms that are called “non-specific.” There are no diagnostic tests.”

These problems are often grouped under the term “acute post-infection syndrome.” “The idea is that there are things that have changed with the infection, and there are still sequelae that we can’t measure right now,” says Durand. “Since many people have had COVID-19, there are many cases of long COVID. We are talking about 15% of COVID-19 cases. So there’s a lot of funding for long COVID.”

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Nova Scotians with long-term COVID symptoms face disability claim hurdles

Two months after contracting COVID-19 and recovering, Beth Wood noticed that she was having trouble concentrating, getting winded easily and feeling unusually tired.

Like three and a half million other Canadians, according to Statistics Canada, Halifax’s Wood has long-term COVID symptoms.

Wood has worked as a community social worker for four decades.

She told CBC Radio’s Information Morning Nova Scotia, her employer has been helping her try to get back up to speed at work. But it hasn’t been successful and she is now considering taking long-term disability.

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Long COVID Doesn’t Always Look Like You Think It Does

In the spring of 2023, after her third case of COVID-19, Jennifer Robertson started to feel strange. Her heart raced all day long and she could barely sleep at night. She had dizzy spells. She felt pins and needles in her arm, she says, a “buzzing feeling” in her foot, and pain in her legs and lymph nodes. She broke out in a rash. She smelled “phantom” cigarette smoke, even when none was in the air.

Robertson, 48, had a feeling COVID-19 might have somehow been the trigger. She knew about Long COVID, the name for chronic symptoms following an infection, because her 11-year-old son has it. But “he didn’t have anything like this,” she says. “His set of symptoms are totally different,” involving spiking fevers and vocal and motor tics. Her own experience was so different from her son’s, it was hard to believe the same condition could be to blame. “I just thought, ‘It’s really coincidental that I never got well, and now I’m getting worse,’” she says.

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Healthy runner’s stroke followed a bad bout of COVID-19

On a ride to high school one morning, Shelley Marshall asked her daughter how things were going with her field hockey team.

At least, that’s what she intended to say. The words came out so garbled that her daughter said, “Mom, what is going on? Are you having a stroke or something? Look at me.”

Marshall looked fine. Although slurred speech is a classic stroke symptom, she didn’t have a droopy face or arm weakness. In a clear voice, she told her daughter not to worry.

Marshall, though, was concerned.

Two days earlier, she noticed that she’d slurred her own name. Her blood pressure had recently been slightly elevated. And she was still recovering from a serious bout of COVID-19, her third. All of this was unusual for Marshall, then 47 and in excellent health, thanks in part to running nearly every day.

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Millions of Americans suffer from long COVID. Why do treatments remain out of reach?

More than a year after catching COVID-19, Sawyer Blatz still can’t practice his weekly rituals: running for miles in San Francisco’s Golden Gate Park or biking around his adopted hometown.

In many ways, the pandemic isn’t over for the 27-year-old and millions of other Americans. It may never be.

They have long COVID, a condition characterized by any combination of 200 different lingering symptoms, some of which, like loss of taste and smell are familiar from initial infections and some totally alien, like the utter exhaustion that makes it impossible for Blatz to walk much more than a block.

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Too many patients are catching COVID in Australian hospitals, doctors say. So why are hospitals rolling back precautions?

Steve Irons’ older brother Jim was only supposed to be in hospital for a short while. A retired stockman from Maryborough, Queensland, Jim was diagnosed with leukaemia just before Christmas in 2022. He was flown to Brisbane for testing, then back to Maryborough Hospital, where doctors were putting together a plan for him to be treated at home.

But a patient in the room next door to Jim’s had COVID, Steve says, and on January 14 last year, Jim tested positive too. “After four days, when the hospital told me he was no longer infectious, I took the risk and decided to visit him,” says Steve, who’d flown up from Tasmania. “I sat with him for three days, playing country music, reading to him.”

And then, on Saturday January 21, Jim Irons died of COVID-19 pneumonia and acute myeloid leukaemia, aged 79. It still distresses Steve to know his brother would have lived longer had he not caught a dangerous virus in a place he should have been safe.

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Video | Doctors raise worries over COVID eye condition causing inflammation

The world is now used to COVID-19 and while the illness isn’t dominating our lives like it used to, it’s still with us. Now doctors are sounding the alarm about a growing number of cases affecting people’s eyes.

They are still learning about why and how it happens, as well as how it can affect vision. Mike Drolet hears about one man’s experience and what optometrists are saying about the condition.

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Rosa (12) heeft long covid en zingt in speciaal koor: ‘Nu sta ik er niet alleen voor’

ZOETERMEER – 12-year-old Rosa sings in a children’s choir. Nothing extraordinary in itself, but it turns out that all the children have one thing in common: they are all suffering from a COVID-19 infection they contracted years ago. The participants come from all over the world and sing together via a video link.

Two years ago, Rosa from Zoetermeer contracted COVID-19. She became very ill and even needed help with showering. Only after a few months was she able to sit up again and take online lessons for half an hour.

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Video | COVID longue : une personne sur dix serait touchée

About 10% of people infected with COVID-19 would still experience symptoms after three months. This is called long COVID. For some, it’s much longer. They suffer from extreme fatigue, pain, problems with concentration, and they just can’t get back to a normal life. Report by Jacaudrey Charbonneau.

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Life with Long Covid – what it’s really like

Living with Long Covid can be exhausting, painful and lonely, and most people do not know when their symptoms will improve.

More than 2000 people in New Zealand have registered as having Long Covid, while another 1200 have started the process to join the official registry.

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Long COVID will take your health, your wealth — then it will come for your marriage

I’m talking about the workforce being diminished, the fact that people can’t think the way they used to think — we’re losing intellectual capital, we’re losing physical capital, we’re losing social capital.

And I wish people would understand the urgency of solving this, because what I’m seeing various countries doing in terms of their response to long COVID is they’re throwing a token amount of money towards research and saying, ‘Well, that will solve it’, patting themselves on the back without understanding that this is just as large an existential threat as climate change.

— Dr. David Putrino
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I lost my sense of smell after Covid. Here’s what I’ve learned about life without it

When the virus shut down my nostrils, I presumed it was a temporary issue. But three years later my food still tastes like cardboard.

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Many Canadians have had long COVID for almost 4 years. Researchers say there’s hope

Four years ago, Sonja Mally was a busy tattoo artist with a photographic memory and penchant for long hikes.

Now, the 38-year-old Toronto woman considers it a good day if she can do a small drawing, muster the energy to walk around the block or “perform very basic tasks.”

“It’s a hard thing to have to explain to people why maybe one day you might be doing fine and the next day you can’t find the words to complete a sentence,” Mally said.

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Reporting on Long Covid Taught Me to Be a Better Journalist

In the early months of the Covid-19 pandemic, when many people who are now still sick were first infected, the common wisdom was that the coronavirus either sent you to an intensive care unit or, more commonly, caused mild symptoms that resolved after two weeks. But when my sister-in-law got infected in March 2020, she was still burning with fever after three weeks, then six, then more. In this newspaper and elsewhere, young and formerly healthy people shared stories about surviving but not recovering. When I interviewed scientists and clinicians about these lingering symptoms in May, most expressed surprise. “That’s unusual,” one said.

It wasn’t. By May 2020, affected patients had already formed support groups thousands strong, coined terms like long Covid and long-hauler and even conducted research on their own communities. Even that March, people with similar illnesses like myalgic encephalomyelitis (also known as chronic fatigue syndrome or M.E./C.F.S.) had warned that the new pathogen would trigger a wave of disability. They knew then what is clear now: People infected by Covid can be pummeled by months or years of debilitating symptoms, including extreme fatigue, cognitive impairment, chest pain, shortness of breath and postexertional malaise — a state in which existing symptoms worsen after even minor physical or mental exertion.

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‘This isn’t a life’: The crushing burden of Long Covid

Ashleigh was saving up to travel overseas in the near future. Now, she’s housebound at 28, sometimes even bedbound, unable to drive or walk more than a short distance. “My mum has had to take care of me a lot this year, and I feel a bit bad for her experience as well.”

Michael, 32, was a busy Crown prosecutor. Now he’s been disabled for more than 18 months, taking long stretches off work and struggling with his mental health and damaged relationships. “It’s probably the worst thing that’s ever happened to me.”

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Long COVID patient feels ‘discarded’ by N.L. government, says it’s deflecting responsibility for condition

Newfoundland and Labrador’s Chief Medical Officer of Health, Dr. Janice Fitzgerald, says addressing and treating long COVID isn’t within the purview of public health.

It’s left some patients in the province feeling left behind.

“There’s so many people that are likely suffering that have no clue because there is no provincial directive,” said Stacey Alexander, a teacher from Corner Brook who has been suffering from long COVID since the beginning of 2020.

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First-person stories from British Columbians

CW: cancer, surgery, medical negligence, denial of care, disability grief

As part of DoNoHarm BC’s #Postcards4PublicHealth campaign, we’ve invited British Columbians to share their stories about the lack of Covid safety in BC – particularly the loss of mask protections in healthcare. Many wrote directly to policy makers. Some generously gave us permission to share their stories with the public and the press.

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